DAY +13

Opps... just tried to post the day without writing anything.
It was another day of progress! Lots of walking, some more eating (stef he started the day with a piece of pound cake!) Down to 2 IV bags... one of which will end at 10pm tonight leaving only fluids running!
He's doing amazing. So well in fact, the doctors are talking about discharging him in the next few days. There they are again, those words "few days". I'm not going to lie... I'm a little nervous. I need to be heading back to work soon and they are talking about having him stay in guest housing here near the hospital.
He sent me over to scope out the place today. It really wasn't bad, it's just a plan old hotel room pretty much. A bed, at recliner, a tv, small fridge, microwave...and that's it. I know it's going to be so hard for him to stay in a "room" like that and try to heal. But they want him within an hour of the hospital in case something were to happen and he has an emergency. Our house is about 1 hour and 20 minutes away.
He will be making trips to the clinic here probably 2 -3 times a week. And if he develops a fever or anything he has to come here to the ER because if he goes to a regular hospital we're told they pretty much won't know what to do with him. Not very many hospitals know that much about transplant patients I guess.
How am I suppose to leave him? What if something happens in the night and he's alone? Now, Jim and Sherry will be staying close... about 40 minutes away and that helps a little but it's not the same as me being here with him. And the "room" is so small and blah... how is someone suppose to get better sitting in a one room "room" all day? He can go outside, and there is a nice park area right by the housing building but still. Come on hospital people think about it. Is that a healthy environment to be in when you are trying to heal from a major thing like bone marrow transplant?
We're gonna do whatever they think is best but we are hoping they will bend the rules for him and let him go home. I know that being home will do wonders for him. He needs to be in the right frame of mind to continue to progress as well as he has been. It will all work out, it's just one small hurdle to jump on this crazy adventure.
I guess I just wasn't really thinking it was going to happen as quickly as it is. I should just be happy that he's moving to the next phase.
I'll let you know how things work out tomorrow.
OH Thanks for the cards and pictures that keep coming! He loves them... and Christine and Trav, yes he'd like to order a larger size of that photo of the two of you!!! poster size would be good
peace, love and happiness until tomorrow