Sunday, June 13, 2010

Day +46

Day +46, funny how time flies.

Friday's appointment was great. His blood counts are all good. His white count dropped a little, which we were told is normal. If it continues to drop they will take him off the bactrium and put him on a different antibiotic. I guess bactrium can cause a little havek with your wbc.

He had a DNA test done a few weeks ago to make sure Tyler's cells are taking over. Without going into too much detail we were told that one test showed 83% "take over" and the other test showed 100%! It's all good news. They will redraw that test about 1 month after the last one to see if he is at 100% on both tests. That is the goal!

He's still doing great ... taking 2 walks a day, about 1 hour each. And his spirits are high. World cup is taking over the tv's...thank goodness since hockey is over. OH and he's so looking forward to no caregiver all day while I'm at work. Yes, he won again in his pursuit to get his way! No more need for 24 hour care as long as he's doing this good. If anything changes we will be calling in the reenforcments but for now we are planning on just normal visits through out the day from those who have offered to check in on him. Hoping these "visits" will get him out doing a little more fun stuff. I'm sure this will be more difficult for me to get used to. I went to the grocery store yesterday and felt a little panicked when I would think of him alone. I know I don't need to worry so much, but I just can't help it

I will continue to be amazed at this miracle we are living through and I will be forever grateful for all the help, support, love and prayers we have received. Words will never be able to full express how we feel... but I think a little worry will always be in my mind. No matter how positive I remain

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